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Big Data Healthcare Project Raises Privacy Issues


Governance & Risk Management , HIPAA/HITECH , IT Risk Management Some privacy experts are raising concerns about Truveta , a new big data collaborative research effort involving 14 U.S. healthcare providers. The providers plan to share de-identified data on tens of millions of patients in an effort to advance personalized medicine – targeted treatments – through the development of an artificial intelligence and machine learning-based platform.

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The participants in Truveta are: AdventHealth, Advocate Aurora Health, Baptist Health of Northeast Florida, Bon Secours Mercy Health, CommonSpirit Health, Hawaii Pacific Health, Henry Ford Health System, Memorial Hermann Health System, Northwell Health, Novant Health, Providence Health System, Sentara Healthcare, Tenet Health and Trinity Health.

“Through structuring, normalizing, and de-identifying data from these health providers, a new data platform will be built, with careful protection of patient privacy and security,” according to Truveta’s launch statement. Risk Management

De-identifying data doesn’t necessarily eliminate privacy risks, says privacy attorney David Holtzman of the consultancy HITprivacy LLC.

“Truveta has not ruled out that it will partner with other data processing companies that may integrate vast stores of data about individuals […]

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