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Improve healthcare by giving patients a say

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Taking a cue from several other countries, India should have patient advocacy groups (PAG) who can help in establishing better patient services. Written by Anubha Taneja Mukherjee

Patient Organisations (POs) play a pivotal role in healthcare as their insights allow stakeholders such as regulators, payers and the industry make better decisions. The key to reshaping the healthcare industry is empowering POs so that they can advocate for themselves and other member patients to improve care across the country. Take thalassemia as an example. Many patients are successful doctors, lawyers, and genetic engineers. They have developed an understanding, competence, and capability to participate in decision making, so why should they not be included in policy making? Instead of considering them victims, there is a need to work with them in tandem to improve patient outcomes.

It is imperative to understand that not all decision makers will be experts in subjects related to thalassemia and it is critical to include patients as they are the ones who have suffered and learnt to live with the disease. Taking a cue from several other countries, India should have patient advocacy groups (PAG) who can help in establishing better patient services, saving millions of lives. […]

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